It takes about an hour to get him ready for bed as all the preparation and hoisting is quite time consuming. When he was finally in bed and medication given, she came through to tell me that the wee "beastie" that he had in his hand was still there and he hadn't let got off it the whole time he was in the shower, had his hair dried and was dressed again.
Awwwwwwwwwwww how CUTE! Now this is something unusual cos often after a seizure Jack is totally flat out and incapable of holding onto anything for prolonged periods of time, in fact in general he struggles to hold onto anything for very long.
|This is the Beastie, I think he really likes it!|
|I just realised that he has wee Beasties on his pj's|
These are the moments that steal into my heart and make him so adorable, keeping me going when times are tough. Which they are at the moment. I have had Jack home for 3 weeks now and he is due back to school tomorrow and it can't come soon enough!
The hardest thing about having Jack at home for long periods is that I am not the type of mother who just leaves him sitting in his chair watching the TV, although there are times that you just have to do that in order to get some stuff done! But mostly I have him out on the floor, stretching his legs, sometimes he manages to get up on his knees but he has very little upper body strength these days so he can't maintain it for long so I have to be down on the floor with him, keeping him safe. I also do physio with him to keep his chest clear and of course the best bit about him being on the floor is that I get lots of cuddles.
|Jack managed to get underneath the Christmas tree|
|Jack with another of his Beasties|
She hadn't known about Jack's latest ambulance ride and my subsequent adrenaline rush but as soon as I started to tell her, I just broke down. She gave me the biggest hug I have had in a very long time and it was such a MUM hug if you know what I mean? Afterwards I felt so much better especially when she quickly made short work of my messy house and ironing. And Holly being the star that she is, got Jack up for me today, dressed him, washed him, wiped his nose, cleaned his ears and wiped the yucky stuff off of his lips much to his disgust............he was so not impressed!
|Loki just loves Jack....|
|and just has to be curled up next to him at all times! Cute.|
So you'll have gathered that there will be no abseiling for me, cliff jumping or canoeing down rapids just for the rush that you get, no sireeee, not me, not now, not ever. I can't even go on a roller coaster without nearly crapping myself. Plus all that kinda stuff is meant to be done by people who don't have their own, in built buoyancy floats which severely impede any kind of sporting activity. Enough said!
So will someone tell Jack that cos I don't think he listens to me! lol