Jack had a lot of seizures yesterday. He had one every hour from 5pm til 9pm then finally fell asleep. That made 11 seizures in total throughout the day. One in particular he stopped breathing for just over a minute and it was so violent that he was half way out of his chair by the time he was finished. He was strapped in too so I just unclipped him and let him slide down to the floor with my support.
I haven't intervened with rescue meds because they are not too bad yet but if he starts having clusters or any over 10 mins then I will. Sometimes they just settle down but when they don't, even intervention doesn't stop them and we end up in hospital.
On top of that, Holly had a total melt down as she is feeling totally exhausted and overwhelmed with the workload she has at school. Add to that all the other activities she has on at the moment: rehearsals for one play and a musical, Mask Theatre, activities with Outfit Moray, filming for a web series and horse riding then it's no wonder that she is feeling exhausted.
She loves all these things so I can't even begin to suggest that she gives one up but luckily the play and the musical will all be done and dusted by the time April is finished. I can't wait to see her in the play which was originally part of the Moray Drama Festival but the festival had to be cancelled because the organizer became very ill. So now some of the drama groups, rather than cancel the whole thing, have got together and plan to put them on themselves in smaller venues. Her play is on Thursday 7th April and I am so looking forward to it.
The musical this year is Fiddler on the Roof. Holly is playing the part of the ghost of Grandma Tzeital and has one song to sing. She just loves the part. I think this is the 5th show she has been in with the St Giles Theatre Group. The cast consist of about 120 kids aged from 10-18 and the shows are always amazing. The kids just love it and they perform for 4 consecutive nights to a packed out venue.
|Grandma Tzeital (source)|
So we are going to be very busy over the next few months what with all that and exams. I tell you, I wouldn't be a teenager again for all the tea in China. Once was enough for me.