Stressed, what, who me?

Greetings from Rachel House.

I had an eventful time getting here. I drove the hour and a half to Aberdeen to pop in to see my friend Kathy who was providing us with lunch and also to give Holly a chance to see the dogs since she hadn't seen them all week.

Jack had quite a few seizures that morning so I was a bit stressed when I arrived at Kathy's. I was busy telling her that I'd forgotten Jack's bibs and feeling bad as his secretions are really bad at the moment when she said "the important thing is that you remembered Jack and you remembered his medication". That's when I looked at her in complete horror as I realised that I hadn't put them in the car!!! She thought I was joking at first but then when I was still looking horrified, the penny dropped that this was a complete disaster!

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Not one to hang around, I grabbed her house phone, phoned my Dad, explained the situation and asked him to go to my house, pick up the meds and the bibs and meet me in Huntly which is kinda half way between Aberdeen and Elgin.

Luckily for me he was in and wasn't away gadding out and about or I would have had a 3 hour round trip as opposed to an hour. So off I went, met him, checked the meds were all there, thanked him profusely and headed off again. Thank god for my Dad.

I had enough time to grab a cup of tea and a sandwich from Kathy before continuing on our journey.

We got to Rachel House around 4.15 and we quickly got Jack settled in. He had more seizures and was feeling pretty lousy. The rest of the evening was spent answering questions again because the last time we were in, none of my answers were recorded in the care plan and they didn't have any of Jack's routine written in.  They weren't sure if it had gotten lost or just not filled in by the the people looking after him the last time and Jack's name plate that we spent hours making him has gone missing too, so we are a bit gutted by that as we'd spent so much time on it! They couldn't apologise enough!

I was still answering questions most of Tuesday and I had called the epilepsy nurse at Edinburgh Sick Kids as previously arranged re Jack's seizures so she came out for a visit. Straight away she upped both meds this time, reviewed his epilepsy protocol which still wasn't right and we discussed other drugs and other forms of rescue meds which I truly truly hope we don't have to use as it has to be given rectally and it is very very undignified, distressing and basically just awful. Fingers crossed people that the meds start to work to get us over this bad patch.

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By 7pm I felt like escaping so I grabbed Holly and suggested we go to the cinema. She didn't need to be asked twice so we let them know where we were going and bolted out the door!

We went to see Bridesmaids and OMG it is so so funny and rude and I laughed til I cried. The best kind of therapy.  While we were there, we booked tickets for the showing of the new Harry Potter film Deathly Hallows Part 2 at a minute past midnight on the 15th July which meant we got free tickets for the showing of part 1 which was on just before hand. Woo hoo bargain or what. I am so excited. This is my birthday treat to myself as I will be 45 tomorrow (Thursday).

In my head I am still 21 and often I act even younger than that according to Holly so I am definitely not mature yet. Being grown up is soooooooo over-rated!