Jack is in respite tonight and tomorrow. His seizures remain the same so I am just waiting to hear from the Neurologist to discuss the new epilepsy medicine.
I am a "sad little fairy" according to Holly. Fairy is her pet name for me because I am small and dinky (in her eyes) and I remind her of the little people like Leprechauns, Fairies and Sprites! Funny funny girl. But she is right, I have struggled to smile this past week as the stress has been getting to me a bit and the huge responsibility for Jack's well being has weighed heavy on me.
I rarely think about it normally but when it seems like everything is happening at once, something has to give. So I am being kind to myself during this respite by doing very little and spending quite a few hours curled up on the sofa watching lots of day time TV and old movies.
Holly got a lovely surprise through the post this week....
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| Woo hoo!!! |
I didn't know that they got a certificate! Holly knew but she had forgotten about it. Along with the certificate came a letter explaining that there were 3 levels to the graduation: pass, merit and distinction, so we were mega excited that she got the highest accolade. I will admit, since I know you wont tell anyone, that I did a wee dance and ran around the house whooping and hollering much to Holly and Jack's amusement.
I am getting a lodger on Friday. She is a foreign student who is coming to our local college from September to January. In preparation for her coming, I had a new carpet put into her room and had quite a bit left over. As I was going to bed the other night, I came across Holly trying to walk the length of it, trapeze like so we spent the next 5 mins having such a laugh messing around on top of it.
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| the poor unsuspecting carpet |
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| the trapeze artist |
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| I believe I can fly!!! |
Oh dear, what can I say? Little pleases little minds!
One of my friends got married a week and a half ago. Congrats to Jeanette and Ian who, I think, had a lovely day. I didn't get a lot of photos as I had Jack with me and my time was spent seeing to him but here are a few.
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| each table was named after a jar of sweeties...we were the Heart breakers |
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| Balloons on the tables |
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| Jack with his trendy neckerchief on |
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| Glamour puss! |
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| Double Trouble |
Jack behaved himself until it came to the speeches. He waited til the Groom was half way through his speech and then he had a cracker of a seizure during which he was jerking so much that he ended up diagonally across his wheelchair, was sick and doubly incontinent. I had to take him out of the hall as I didn't want everyone to see him like that. I took him home after, as Granny Mac was babysitting for him so that Holly and I could go back for the dancing at night. It was a really good laugh. Good food, good company and my feet hurt by the end of the night with all the dancing!
Or was it the shoes? Apparently they were the talk of the wedding. The photo doesn't do them justice but believe me when I tell you they were gorgeous!
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The three of us just after the service. As you can see, I don't do dresses!
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Have a lovely day my little gigglers.