LOL. Do you like the title of this post? One of my best friends gave me a Christmas card with that on the front and it made me howl with laughter cos basically, I couldn't have put it better myself.
Jack is still in hospital and I have spent the last two weeks arguing with doctors who have refused to keep on top of his pain. Finally they have decided that he needs an operation for a Fundoplication (tightening of the lower oesophagus where it enters the stomach) and a Jejunoscopy where they fit a feeding tube into his gut, bypassing the stomach. At the moment he has a temporary feeding tube. They told me yesterday that they can't slot him in for these operations until 11th January, 3 weeks away!
I was told that there are other people on the waiting list before him and I argued that as they were well enough to be at home and Jack was not, surely he would jump the queue. No such luck.
Apparently it is not that straight forward as Jack may well need Intensive Care nursing after the operation so they have to make sure that there is space. As Aberdeen Children's Hospital does not have an intensive care ward that would mean transferring him to another hospital. So I suggested they just transfer him to Edinburgh now so that he doesn't have the trauma of the journey, post operation. That way, he would be fast tracked and it would also mean that I wouldn't miss out on the long awaited appointment Jack has with the back surgeon in Edinburgh on the 18th January.
Plus I couldn't stand the thought of staying another 3 weeks in that bloody hospital so this morning I lost the plot with the doctors (once again!) and "threw my toys outta the pram".
The result being that Jack was taken back down to HDU as they decided he might have another chest infection and needed more intensive nursing and he is being transferred to Edinburgh at the start of next week or sooner if his condition deteriorates.
So it looks like we will finish the year with a bang, the same way we started the year.
I finally resigned myself on Monday to the fact that having Jack home for Christmas was not going to be an option so I booked us into a hotel for the weekend, close to the hospital and that means we can be close to him but have somewhere a bit more luxurious to go to at the end of the day. My sister (in law) Jacqui will be joining us, as will my lovely lodger, Diana.
If all else fails, it's good to have a back up plan.
In the end, it's not where you are, it's who you are with that counts.
I wish you all a very Merry Christmas, where ever you are.
Jack is still in hospital and I have spent the last two weeks arguing with doctors who have refused to keep on top of his pain. Finally they have decided that he needs an operation for a Fundoplication (tightening of the lower oesophagus where it enters the stomach) and a Jejunoscopy where they fit a feeding tube into his gut, bypassing the stomach. At the moment he has a temporary feeding tube. They told me yesterday that they can't slot him in for these operations until 11th January, 3 weeks away!
I was told that there are other people on the waiting list before him and I argued that as they were well enough to be at home and Jack was not, surely he would jump the queue. No such luck.
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| Does this look like a well boy to you??? Jack getting an EEG. |
Apparently it is not that straight forward as Jack may well need Intensive Care nursing after the operation so they have to make sure that there is space. As Aberdeen Children's Hospital does not have an intensive care ward that would mean transferring him to another hospital. So I suggested they just transfer him to Edinburgh now so that he doesn't have the trauma of the journey, post operation. That way, he would be fast tracked and it would also mean that I wouldn't miss out on the long awaited appointment Jack has with the back surgeon in Edinburgh on the 18th January.
Plus I couldn't stand the thought of staying another 3 weeks in that bloody hospital so this morning I lost the plot with the doctors (once again!) and "threw my toys outta the pram".
The result being that Jack was taken back down to HDU as they decided he might have another chest infection and needed more intensive nursing and he is being transferred to Edinburgh at the start of next week or sooner if his condition deteriorates.
So it looks like we will finish the year with a bang, the same way we started the year.
I finally resigned myself on Monday to the fact that having Jack home for Christmas was not going to be an option so I booked us into a hotel for the weekend, close to the hospital and that means we can be close to him but have somewhere a bit more luxurious to go to at the end of the day. My sister (in law) Jacqui will be joining us, as will my lovely lodger, Diana.
If all else fails, it's good to have a back up plan.
In the end, it's not where you are, it's who you are with that counts.
 |
| Guy, one of the nurses, looking very festive! |
I wish you all a very Merry Christmas, where ever you are.
