Jack is now in HDU. They pushed him too hard when they tried to wean him off the ventilator and he then had a very rough few days and was put on a Bi-pap ventilator, which was a bit more intense.
They haven't tried to wean him off it at all, has been on this for 4 days and is exhausted.
The seizures have become more intense too so they have put him on a new med, starting today. So here's hoping that there is not an extreme reaction this time but if there is, at least he is in the best place.
I am hoping to get him sitting up in his wheelchair today in the hope that this helps him to clear his chest without endless suction, which is distressing for both him and me.
They have said not to expect to be home for at least another week so I just have to be patient and be guided by Jack and how he copes with everything.
Keep sending him your positive vibes.
They haven't tried to wean him off it at all, has been on this for 4 days and is exhausted.
The seizures have become more intense too so they have put him on a new med, starting today. So here's hoping that there is not an extreme reaction this time but if there is, at least he is in the best place.
I am hoping to get him sitting up in his wheelchair today in the hope that this helps him to clear his chest without endless suction, which is distressing for both him and me.
They have said not to expect to be home for at least another week so I just have to be patient and be guided by Jack and how he copes with everything.
Keep sending him your positive vibes.
